The Hemophilia Alliance is a not-for-profit organization that comprises hemophilia treatment centers (HTCs) that either have, or are seeking to have, factor delivery programs under Section 340B of the Public Health Service Act. The purpose of the Alliance is to promote the common interests of these HTCs. The Alliance began in November 1998, and was incorporated as a 501(c)(6) organization in March 2001.
Hemophilia Alliance Board Members
Hemophilia Alliance Members
The Alliance's Vision:
The Alliance will be the premier resource to support its members as they achieve excellence in providing services to their patients.
Some of the Alliance's Achievements to Date:
- A Medicaid Carve out clarification
- Proposed grant requirement changed to a grant statement.
- Various responses to Federal Register notices, letters and testimony to federal agencies and committees
- Information sharing
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Some of the Alliance's relationship building:
- Office of Pharmacy Affairs has allowed the Alliance to contribute to its report to Congress
- Maternal and Child Health Bureau consults the Alliance on all major §340B issues
- Through our relationship with the Office of Inspector General, the Alliance was able to forewarn HTCs of a pending audit
- Manufacturers have supplied the Alliance with data and information around product supply
- The Government Accountability Office consulted with the Alliance on a recent report to Congress
Biographies:
Contacting the Alliance
To learn more about the Hemophilia Alliance, feel free to contact us at info@hemoalliance.org. |
